Tuesday, June 30, 2015

Spring in the Prouty Garden

Once again, it's been a while since my last post and once again, I'm writing from the place that seems to inspire me to write the most - the Prouty Garden at BCH.  Hope and I came down after our Tuesday mom's group for an appointment with her endocrinologist.  Since the appointment was at 1:15 and it wasn't worth going home, we got to spend some time in the garden having lunch.  



I don't know if I've mentioned that an endocrinologist was part of our team before.  After Hope's surgery, her system pretty much crashed, including her thyroid.  She was diagnosed with hypothyroidism and put on medicine, and today, that's the only medicine she's on.  All along, they told us she would likely outgrow it, a condition called "sick thyroid".  Basically, she was so sick her thyroid shut down.  It's amazing, because sometimes I forget just how sick she was.  She was REALLY sick.  Anyway, today was a check up.  Like all appointments these days, it went incredibly well.  For the first time since leaving the hospital, we have a timeline.  
Things look so good, that we're talking about potentially weaning off the meds entirely by the time she is one, which scary enough, is not that far away.  In addition, Hope was weighed.  She weighed in at 14.6lbs, a whopping 5th percentile.  I have no illusions of Hope ever being a chubby, roly poly baby, but each time she takes a step up on the chart, we all breathe a little bit easier.  We're doing things right, and she's growing bigger and stronger every day.  




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